Symptomatic Days

Symptomatic days are defined as days when I experience more symptoms than others.  They are the days I dread the most.  Sometimes I will get up in the morning and just know it is going to be a rough day, other times I wake up feeling great, then all of the sudden, out of nowhere, I am extremely symptomatic. 

Symptomatic days vary.  About once a week I will have a day or days, when I feel just about every symptom I could possibly have.  I do have days, sometimes several in a row with very minimal symptoms.  Everyday I experience pain or discomfort, it has just become more tollorable. 

My personal symptoms with FMD are facial droop, changes in voice and speech, short term memory loss, anxiety, nausia, loss of appetite, tremors in my hands and face, muscle twitching, muscle pain (it feels as though my body is being pulled in opposite directions), pain in the arches of my feet, inability to walk without assistance, almost full loss of dexterity in my hands, headaches, blurred vision, hot flashes, cold flashes, flu like symptoms and just overall exhaustion.  I think I have covered most of the symptoms, if I am missing any,  will add them as I think of them. 

Yes, I have a permanent handicap parking hanger for my vehicle.  I own a cane and I have been known to use an electric scooter to get around in large settings.  I am slowly turning into a little old lady.   

Some days you will see me and I will appear to be fine, other days you see me and you can tell something is wrong.  I try to hide it sometimes, but I kinda gave up on that because there is just no use.  People are going to notice.  I don't need special treatment, but sometimes, I need special care and adaptations.  So far I can manage my own care.  The things I do need help with, I ask for help with.