Friday, May 17, 2019

Today has been one of the FMD kind of days that I hate.

Yesterday, I somehow managed to have a wonderful day with my daughter, even though it was a very symptomatic day.  It started when I dropped her off at preschool for tye dye day, they tye dye a shirt at the end of the year.  I was asked to stay and help as they were shorthanded some parents.  The preschoolers had a blast.  We then went to lunch with another parent and her little girl and the girls had a ball.  One of the lessons the children learned was how to mix food coloring with water to make different colors, so of course Mary and I had to go and get some clear cups and some food coloring so she could show off what she had learned about color.

Needless to say, three stores and about four hours later, we finally made it home.  Mary played with the colors and then we went to the local playground where she played hard.  She fell asleep by seven pm.  I guess I had wore her out pretty good!

I stayed up and caught up on some shows I had missed and had recorded and got to bed around eleven pm.  I woke up this morning to swelling in my face and my limbs and could hardly walk, that is usually a good sign of a really bad day ahead.

It is common for those of us who suffer with FMD to have days here and there that are just a complete wash, meaning it feels like you are coming down with the flu.  Every muscle in m body hurts, I get a headache and hot flashes and chills.  I am just exhausted.  Thankfully Mary's dad took a day off today so I could sleep most of the day, which I did.  These are days of zero appetite, an just fluids are a godsent.  Nothing other than rest and sleep can get me through a day like this.

These types of days are not an often occurrence, usually three to four times a month, but when they rear there ugly face, it is just awful and makes you remember why you cannot make plans in this life and makes it extremely difficult to hold a job.

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